The dark side of Parkinson's, the agonists and the ecstasy

Sometimes it is difficult or embarrassing to talk about the symptoms. Patients may be reluctant to share their experiences with their family doctor, or may not even be aware that this is a component of Parkinson's disease. These short films are designed to provide clues to patients by addressing uncomfortable issues and encouraging them to make a connection with their illness and seek medical help.

Focused ultrasound - advantages and disadvantages

Focused ultrasound, also known as high-intensity focused ultrasound (HIFU), is a noninvasive neurosurgical technique used to treat Parkinson's disease. This method uses focused sound waves to selectively stimulate or destroy areas of the brain responsible for Parkinson's symptoms. Focused ultrasound is typically used to treat tremor, which is a common symptom in people with Parkinson's disease.

PingPongParkinson German Open 2023

From May 18 to 21, 2023, one of the largest and most spectacular table tennis tournaments in the world took place in Düsseldorf: the Quooker PingPongParkinson German Open 2023. 200 players with Parkinson's from all over the world fought for medals in the ARAG CenterCourt Hall, and if not everyone could win, so obviously everyone had a lot of fun at the successful event.

International PingPongParkinson VR Championship

After more and more "Parkies" joined our project PingPongParkinson-VR and we already have our own ranking list, the step to the first tournament was only logical.
 
In the future, the "International PingPongParkinson-VR-ChampionShip" will take place on the first Sunday of each quarter.
 

We start unscheduled on Sunday February 5th at 18pm. Anyone with Parkinson's disease and who has the technical requirements for the TT simulation "ELEVEN TT" (VR glasses Quest1 or 2) can take part.

 
The tournament will be broadcast live on twitch and youtube. Interested parties should please apply as soon as possible, since only 20 starting places can be allocated in the first tournament.
 

Parkinson's in Italy

As in Germany, there are also various self-help associations and contact points for people with Parkinson's in Italy. Massi is involved in two national associations, Parkinson Italia, an umbrella organization, and AIGP, an association for young patients, which Massi chairs. The organizations are currently working together to set up a national network in order to be able to bring certain topics to the public, but above all to politics, with more emphasis.

Taking care of young people is new in Italy. Nobody knows exactly how many young people with Parkinson's disease there are in Italy. Officially, no distinction is made according to age at diagnosis. The symptoms and course of the disease look very different in young people. Massi even goes so far as to say that young people with the disease are a completely different disease. The Association for Young Patients, which has offices in all parts of Italy, is working to collect this information and data in order to promote more differentiated care for patients.

sleep and Parkinson's disease

Gabi Fastner's movement shorts

Who of us affected does not know them, the daily problems with a stiff neck, the problem of walking upright, dizzy spells, sudden tiredness, heavy legs, back pain...

Gabi Fastner has taken on these everyday hurdles and shows us in 12 clips what you can do about it.

Parkinson's and virtual table tennis

But with the increasing application possibilities of VR software (virtual reality), combined with a falling price of the necessary devices, we are currently experiencing a paradigm shift. From the very beginning of computer games, sports simulations have emerged today that have reached an unprecedented level of realism in the virtual world.

First and foremost is the table tennis simulation Eleven TT, which is unparalleled in terms of its realism and is gaining more and more recognition as a “real” sport on both a national and international association level.

Parkinson's at a young age - about help and self-help

largely unnoticed by the public, the people who develop Parkinson's are getting younger and younger. It is now no longer uncommon for the neurodegenerative disease to appear even before the age of 30. 

This naturally poses a particular challenge for the medical profession, given the variety of symptoms in younger people, Parkinson's is least likely to be suspected.