The Authors

The people who make the Parkinson Journal possible

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Jurgen Zender

Jurgen Zender

Parkinson's Journal Editor, Author, Entrepreneur

My life is characterized by always having done things when the time was right. Even if occasionally I had the time, but I wasn't ready for it myself. But these are exactly the experiences that I would not want to miss under any circumstances.
I was diagnosed with Parkinson's in 2019. Like many others before me, I spent the following weeks working intensively on symptoms, therapies and current research. Thanks to Google, I scoured the Internet in countless hours and, with a lot of effort, got a first overview. I quickly realized that the flood of information seems huge, but just as disorganized. Especially in the first phase, in which you have to deal mentally with the diagnosis, unnecessary fears can arise that put a lasting strain on the psyche.
The Parkinson Journal is my contribution to counteract this.

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dr Andrew Becker

dr Andrew Becker

Medical Director and Chief Physician of Neurology at the SRH Kurpfalz Hospital in Heidelberg

dr Andreas Becker, Medical Director and Chief Physician of Neurology at the SRH Kurpfalz Hospital in Heidelberg, studied medicine in Hamburg. He spent his first clinical years under the direction of Prof. Dr. Lutz Lachenmayer at the General Hospital in Hamburg-Barmbek before moving to neurology at the University Hospital in Marburg in 2001, Prof. Dr. Wolfgang Oertel changed. Among other things, he was involved in setting up the Parkinson's Competence Network and oversaw the multi-centre studies and the Brain Bank projects. In 2014 dr. Becker was appointed chief physician to Heidelberg. Dr. Becker heads the Parkinson's network RheinNeckar+ and was involved in founding the association Parkinson Networks Germany eV. Currently working Dr. Among other things, Becker and his team are involved in the creation of an ICF core set for people with Parkinson's disease in order to ensure an individual assessment of health care needs.

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Thorsten Boomhuis

Thorsten Boomhuis

Chairman of the Board of PingPongParkinson Germany eV and Parkinson Association eV

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May Evers

May Evers

Author, blogger, foundation manager

May Evers, who has Parkinson's herself, has been an "activist" in the world of Parkinson's organizations for years. Be it as a member of the board of trustees of the Hilde Ulrich Foundation, as co-editor of TeamDopamine - the dopamine book, as co-initiator of the AktivZeit Challenge or as a founding member of the German section of the PD Avengers "End with Parkinson's", May knows the disease and everyone who cares about it Combat endeavor better than almost any other. In her column she reports at irregular intervals from the world of Parkinson's foundations, self-help groups and research projects.

Gaby Fastner

Gaby Fastner

Gymnastics teacher and author

Gabi Fastner is a state-certified gymnastics teacher and author of numerous fitness guides. She is known to a wide audience through her appearances in the popular television series "Tele-Gym" and her videos on YouTube, which have been viewed millions of times.

dr Martin Riegels

dr Martin Riegels

chemist, author

dr Martin Riegels, born in 1958, has been for 22 years
diagnosis of Parkinson's disease. Until his retirement, he was plant manager of a chemical plant in Belgium
His current project:

1. Use of augmented reality to overcome gait problems (freezing), prototype can be tested; 2. Creation of historical logs; 3. PPP location in Langenfeld, currently 13 members

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Catherine Wersing

Catherine Wersing

Podcaster, social worker

My name is Kathrin Wersing, I was born in 1979, married to a wonderful man and we have two great children together.
I work as a social worker at a self-help association, where I support families with chronically ill children.

The diagnosis of Parkinson's caught me pretty cold at the age of 40. After the initial shock and the discussions in a self-help group for people with early Parkinson's disease, I quickly realized that we all need positive stories. Because I am convinced that positive thinking, humor and confidence contribute enormously to positively influencing the course of the disease.

That's why I decided to embark on a journey with my podcast to people who lead happy and fulfilling lives with Parkinson's. I would like to share this wealth of experience with everyone. I would be happy if you accompany me on this journey or even enrich the podcast with your story.

Laughter, spending time with family and friends, a lot of sport and exercise, music, but also the exchange with like-minded people help me in dealing with the disease.

"In the end everything will be fine.
And if it's not good yet
then it's not the end!"

Oscar Wilde

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dr Marieke Schwed

dr Marieke Schwed

sports scientist

I'm Mareike Schwed, 45 years old, doctorate in sports science, Taunuskind, movement freak and time-out specialist.

I founded the neurowerkstatt in January 2015 to accompany people with neurological diseases such as Parkinson's, multiple sclerosis and polyneuropathy on their way to self-determined use of sport, training and exercise as a health resource.

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dr Johannes Heimann

dr Johannes Heimann

medical professionals

Dr. med. Johannes Heimann was a gynecologist and obstetrician during his career and has been diagnosed with Parkinson's for several years. In various Parkinson's forums he goes deeply, often also humorously, into the numerous questions of the members and regularly hits the nerve of the community with his language and choice of topics.

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Amy Oranella

Amy Oranella

Occupational Therapist, Lecturer, Author

Amy Orellana has years of experience treating patients with neurological disorders in rehabilitation clinics and occupational therapy practices; She is a lecturer and member of a working group of doctors and therapists on the topic of Parkinson's.

As part of her therapeutic work, she often finds out that relatives receive too little attention. It is therefore important to her to strengthen them and support them with practical tips.

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Nina Juncker

Nina Juncker

Pharmacist, video collector

Nina is a passionate video collector and researches, among other things, for the Parkinson Journal on the Internet, preferably on YouTube, for videos that present facts about Parkinson's in a clear and understandable way. Her collected works can be found on YouTube under Nina's pd toolbox.

Simply click on the image to view the toolbox.

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M. Leines is different

M. Leines is different

Cameraman, producer, director

His profile

Journalist and photographer at Norwegian Broadcasting Corporation at NRK

Has worked as a cameraman/editor/producer at NRK HORDALAND

Has worked as a producer, cameraman, lighting technician at Troens Bevis Verdens Evangelisering

Worked as Service Engineer Electromedical Dept at Siemens AG

Studied Communications-drama-film at Hofstra University.

Anders has been a PwP (People with Parkinson's) for many years and devotes many of his productions to educating people about our clinical picture. A part of his life and the award-winning mini series "the dark side of Parkinson's" were translated into German by us and published here exclusively.

Louise Walther

Louise Walther

Neuro-analyst, trainer, author

With a focus on functional neurology and neural movement training, I offer a holistic view of physical performance. I stand for a paradigm shift from the purely biomechanical to the neuro-biomechanical view of people. It's not about self-optimization, but about a balance between tensing and relaxing the nervous system. Because movement and pain originate in the brain. And I know too well what I'm talking about - I've had two emergency disc operations myself and have tried for years to get my pain and limitations under control. But nothing really helped. Until I learned and understood that pain originates in the brain and we have to radically rethink training.

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Kristina van Eyck

Kristina van Eyck

Occupational therapist at Klinikum Osnabrück GmbH

Kristina van Eyck is an occupational therapist and got to know the various facets of Parkinson's disease during her work in complex Parkinson's treatment. In this context, she sees occupational therapy not only as treatment for the person concerned, but also as advice on possibilities and suggestions for adapting and shaping everyday life and becoming active - as help for self-help.

Music and dance, which have been shown to have good effects on the disease, are a particular focus of treatment.

She gives dance and rhythm courses as well as neurotango courses for Parkinson's sufferers and is a member of the Osnabrück Parkinson's Network.

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Sophia Plochl

Sophia Plochl

Supervisor & coach, networker, actor at the points of contact between photography and consulting

The unusual combination of two biographical events shaped the fifth decade of her life: at the age of 40 she became a mother for the first time relatively late, at the age of 47 she was diagnosed with Parkinson’s disease in autumn 2018 at a relatively young age. Her two sons were not quite 7 and 3 years old at the time.
As a trained lawyer and supervisor, she worked for years as a consultant in the social sector until the diagnosis, went through a period of reorientation after the diagnosis, discovered the world of photography and published two books in 2020 and 2021.
Since January 2022 she has been self-employed as a supervisor and coach.
In addition to work and family, she takes enough time for sporting activities as well as rest and relaxation. Depending on her time resources, she is sometimes more or less active in the Parkinson's community.
She is particularly interested in the topics of gender, lifestyle and "normalization."

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Karin Grote Westrick

Karin Grote Westrick

Group leader THS at the dPV eV

My name is Karin Grote-Westrick, born in 1972, trained real estate agent, initial diagnosis
Parkinson's disease 2011, deep brain stimulation implantation 2021.

Apparently I hadn't hit the jackpot in the lottery of life. It wasn't all planned that way! But as you know, things always turn out differently than you think. Luckily, I'm a born optimist and try to make the best of every situation. Thus, I feel forced to have been chosen by my companion Parkinson, to have earlier gained the awareness to live better in the "here and now" and not to postpone my dreams and goals until later.

In 2021 I founded a dPV eV self-help group and offer interested parties an exciting exchange of experiences or lectures on the subject of Parkinson's and deep brain stimulation every quarter. Unfortunately, even with a brain pacemaker, the illness and handicaps do not stop completely. Experience has shown that the state of mind can always be improved with tips, words of encouragement, understanding and good conversations within the regulars’ table community!
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Katharina Trübwasser

Katharina Trübwasser

LSVT therapist

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Beate Schönwald

Beate Schönwald

Beate Schönwald Parkinson Nurse Parkinson Day Clinic UKE.

My name is Beate Schönwald. I work as a Parkinson's nurse in the Parkinson's day clinic at the University Hospital Hamburg Eppendorf.
In 1997 I started working as a nurse in the neurological intensive care unit at the UKE. In 2015 I completed the “Parkinson Assistant” training course.

In 2016, I completed further training to become a Parkinson’s nurse

“As a passionate kickboxer, I was thrilled to see boxing and martial arts available in the USA for people with Parkinson's
is offered – and how good the response is. Positive reports of improvements in patients' motor skills, strength, balance and quality of life gave me the idea of ​​“Kick Parkinson's”. Before the pandemic began, we did some trial sessions in the UKE day clinic.
Training sessions conducted with two participants. They were also enthusiastic and expressed their desire to continue.

We are very pleased that HUS is supporting us in this.”

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Chantal Herberz

Chantal Herberz

Chantal Herberz has been working in the field of gait analysis and its application in the medical environment for 14 years. At Portabiles HCT she is responsible for the product orientation of ParkinsonGo and thus forms the interface between the various users (patients, nurses, neurologists, therapists) and the internal development team.

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Karlheinz Reinfrank

Karlheinz Reinfrank

Project Manager Research and Development at Parkinson Verbund eV

Having grown up in the wine-loving Palatinate, I studied mathematics and psychology and worked in the high-tech world for more than two decades. Then I went back to my roots: after further studies, I can call myself a "wine academic" and have had great pleasure in organizing seminars and tastings and publishing a wine magazine.
Since being diagnosed with Parkinson's, I have been working in several self-help groups to create value for patients and their families and I organize the interface with research in the Parkinson's network.
And exercise is a must! With PingPongParkinson I exert myself every week playing a fast game with the small balls.
Lesson learned: Maintaining quality of life with Parkinson's disease is hard work.

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