Why the relatives are so important to me in my work as an occupational therapist:

It is the relatives who know the affected person better than anyone else. They have known her for many years, have noticed the development and are stunned to observe the change and the slow decline in skills. They can perceive and interpret the smallest of changes, often even before the person concerned notices them themselves, because his or her self-awareness has diminished.

No matter how much specialist knowledge and professional experience doctors and therapists have, when it comes to assessing exactly how the patient is doing, they lag far behind the partners, children or close friends who spend time with him or her every day.

>> That's why, as a therapist, I always ask for an assessment from the relatives. So I can get a comprehensive picture.

I often notice that the relatives are increasingly overwhelmed as the symptoms increase. The tasks pile up, and most of the responsibility is borne by the family member. In addition, there is sometimes a change in the personality of the person affected. Reduced drive, depressed mood or less empathy make access to the person concerned difficult and can strain the relationship.

>> Therefore, as a therapist, I am always available as a contact person for relatives. I am also happy to pass on tips and advice for everyday life so that you can deal better with everyday situations.

The third reason why I have a special look at the relatives is perhaps the most important. It is the unprecedented, loving support and care. Relatives think a lot, do everything to ensure that people with Parkinson's are well and put their needs first.

The spotlight shines constantly on the person concerned. Friends, acquaintances and the entire healthcare system look at the patient. Rarely does anyone ask how the relatives are doing.

>> It is therefore particularly important to me to increase the spotlight and also to see relatives and recognize them as people.