Keyword archive for: support group

Plea for the self-help group

After the DAT scan, I came to the clinic for the first time, I was lucky and two days later I was offered a place. Here I was given the first information about what to expect and how to proceed. I was totally overwhelmed by the situation and didn't want to know anything at all.

My first thought was: what I don't know can't burden me. I wanted to push it away. Hear nothing of the madness. My thought was: please just put me on the medication and leave me alone!

Impressions from the World Championships in Pula

Impressions from the PingPongParkinson World Championships in Pula 2022

Two new self-help groups

Two self-help groups worth mentioning have recently started.

On the one hand, there is the Facebook community "It wasn't planned that way". The Facebook group only accepts members under the age of 55 and is therefore aimed at the ever-increasing number of people diagnosed with Parkinson's at a young age.

The moderator Nina Juncker, mother, working pharmacist, herself suffering from Parkinson's disease at a young age, knows the problems of these PmPler* only too well from her own experience. *PwP = person with Parkinson's disease

PPAN network, part 1

Wouldn't it be wise if all self-help organizations, or at least the majority of them, came together to bring much more strength to the streets by acting together?

Nadine Matthes from Parkinson Youngster is trying to do exactly that with her newly founded network PPAN and is by no means met with approval. We asked key players in the scene for their opinions and examined them from different angles in our new format, the Parkinson-Journal Magazin.