Quo vadis dPV?
Quo Vadis dPV?
My very personal story
In 2019 I was surprised by the diagnosis of Parkinson's and anyone who has had this experience knows the feeling of helplessness, panic and uncertainty.
Quo Vadis dPV?
My very personal story
In 2019 I was surprised by the diagnosis of Parkinson's and anyone who has had this experience knows the feeling of helplessness, panic and uncertainty.
The increased risk of melanoma in Parkinson's patients has been documented in numerous scientific studies. A first comprehensive meta-analysis was published by Liu and colleagues in the journal Neurology in 2011 and found that people with Parkinson's had more than double the risk of being diagnosed with melanoma. An important study on this topic was also published in 2010 by John Bertoni and colleagues in the Archives of Neurology (later renamed JAMA Neurology). The Bertoni study used data from the North American Parkinson's and Melanoma Survey Group and found that the incidence of malignant melanoma was 2,24 times higher in the Parkinson's cohort compared to the general population.
Most people still don't know what to do with the term Parkinson's. Hardly anyone knows which symptoms often make life very difficult for those affected. And if someone ever associates Parkinson's with a symptom, it's most likely tremor. Newly diagnosed people in particular often have major problems understanding their symptoms or their diagnosis in line with what they have learned about Parkinson's.
The Parkinson's self-help landscape in Germany is as diverse as it is impenetrable. Hundreds of small and large, regional and national associations and foundations offer their help to people suffering from Parkinson's disease.
Katrin Wersing has therefore taken the trouble to provide selected initiatives, self-help organizations and foundations that provide support for patients with Parkinson's, professionally sound information and
Offer support to put together in a manageable list.
The self-help group Jupa-Rheinland-Pfalz together with the German Parkinson's Association has come up with something special. With the ParkinsONTOUR they want to reach as many people as possible in Rhineland-Palatinate and Saarland in 2023.
The aim of the series of events is to make Parkinson's self-help tangible and to show that acting together can have a positive effect. Not only those affected, but also their relatives should be addressed. Experts from Parkinson's self-help as well as from the medical and therapeutic field support the tour.
After more and more "Parkies" joined our project PingPongParkinson-VR and we already have our own ranking list, the step to the first tournament was only logical.
In the future, the "International PingPongParkinson-VR-ChampionShip" will take place on the first Sunday of each quarter.
We start unscheduled on Sunday February 5th at 18pm. Anyone with Parkinson's disease and who has the technical requirements for the TT simulation "ELEVEN TT" (VR glasses Quest1 or 2) can take part.
The tournament will be broadcast live on twitch and youtube. Interested parties should please apply as soon as possible, since only 20 starting places can be allocated in the first tournament.
But with the increasing application possibilities of VR software (virtual reality), combined with a falling price of the necessary devices, we are currently experiencing a paradigm shift. From the very beginning of computer games, sports simulations have emerged today that have reached an unprecedented level of realism in the virtual world.
First and foremost is the table tennis simulation Eleven TT, which is unparalleled in terms of its realism and is gaining more and more recognition as a “real” sport on both a national and international association level.
largely unnoticed by the public, the people who develop Parkinson's are getting younger and younger. It is now no longer uncommon for the neurodegenerative disease to appear even before the age of 30.
This naturally poses a particular challenge for the medical profession, given the variety of symptoms in younger people, Parkinson's is least likely to be suspected.
Impressions from the PingPongParkinson World Championships in Pula 2022
Two self-help groups worth mentioning have recently started.
On the one hand, there is the Facebook community "It wasn't planned that way". The Facebook group only accepts members under the age of 55 and is therefore aimed at the ever-increasing number of people diagnosed with Parkinson's at a young age.
The moderator Nina Juncker, mother, working pharmacist, herself suffering from Parkinson's disease at a young age, knows the problems of these PmPler* only too well from her own experience. *PwP = person with Parkinson's disease