The Angry Professor's Appeal

   

A contribution by May Evers from the “Better knowledge!”

The Angry Professor's Appeal
dr Ray Dorsey is Professor of Neurology and director of the Center for Human Experimental Therapeutics” from the University of Rochester in the USA. And he is angry and disappointed in his colleagues.

The trigger is an international Parkinson's congress that was held in Madrid a few days ago and was attended by Dr. Dorsey attended. The most recent studies presented there focused mainly on the genetic cause of Parkinson's.

I feel for dr. Ray Dorsey. You're probably wondering why this is the cause of an outburst from one of the world's leading neurologists and Parkinson's experts. Genetic research in Parkinson's has made great strides.

The fatal thing is that most researchers concentrate on a topic that only Affects 17 percent of people with Parkinson's disease.

On the other hand, the realization that Pesticides one of the main triggers of Parkinson's disease are largely ignored. That would be the case Prevention is an important and promising milestone for ending the disease.

dr Ray Dorsey is disappointed in his peers and feels that only pressure from Something will really change on the outside.

But instead of burying his head in the sand or going back up his ivory tower, wrote dr. Dorsey a strong appeal to humanity:

"Reflection and a call for change might be in order, but I have nothing seen or heard of it… As long as the millions affected by Parkinson's disease don't Demand changes, the status quo will prevail spread like wildfire around the world.

I definitely agree with Mr Dorsey. But in his anger he has one important little thing overlook. The spark of hope, small and easy to miss, but growing, and fast. I myself was just yesterday at the PD Avengers general meeting and I firmly believe that they have the potential to become the great movement that Dr. Dorsey demands and which is necessary to bring about a significant change.

You must know that dr. Dorsey is one of the four authors of the much-discussed book Ending Parkinson's Disease (End Parkinson's) is. And that this book in 2020 founding the PD Avengers has led.

The PD Avengers now have local coordination offices in various countries, as well in Germany, who have the task of bundling the strength of the local Parkinson's organizations, so that there can be a global demand with a loud voice to end Parkinson's.

I work with Nina Juncker, Kathrin Wersing, Andreas Schairer and Silvia Lerch belief in it. We have already taken a first step with the "AktivZeit" campaign.

Help us to take further steps in this direction and the appeal of the angry Dr. Dorsey to lead to success.

Translated Ray Dorsey's appeal into German

Madrid, Spain
14-17 Sep 2022
cloudy thinking?

I flew to Madrid from England to attend the International Congress of Parkinson'sillness and movement disorders. There I saw countless friends and colleagues from many of which I hadn't seen in years. I also witnessed how little changed in changed how we deal with the disease.

Despite the fact that most of Parkinson's disease is due to environmental factors is, the topic is almost completely ignored. The program of the congress included a plenary session, which addressed the impact of genetics on clinical care, and 67 abstracts on the genetics of Parkinson's disease. In contrast, there were no meetings environmental causes, and only 32 papers were devoted to epidemiology”. The genetics is important and may explain why, for example, some farmers are exposed to pesticides were suffering from Parkinson's disease and others did not. Yet we have known for over a century that only ~15% of those affected have a family history of the disease. The We must pay more attention to environmental causes.

Another focus of the congress was the treatment of the disease. This included up-to-date information on clinical trials, a discussion on choosing the best therapeutic goals, a video session on “new chemodenervation strategies”; to Treatment of the symptoms as well as numerous other lectures on physical, linguistic and surgical therapies of the disease. Again, this is important, as is the prevention involved
program was not mentioned once. 

The status quo clearly doesn't work:
1. Parkinson's is the fastest growing brain disease in the world

2. Almost no organization focuses primarily on the prevention of the disease

3. In the last five years, the use of the pesticide paraquat, which is banned in China, has increased in
doubled in the United States.

4. In the wealthy countries, a large proportion of the people concerned do not receive any
special treatment.

5. In less affluent countries, the majority do not have access to safe,
inexpensive and highly effective treatment (levodopa).

6. The US government spends 100 times more on Parkinson's treatment than on Parkinson's
Research

7. There have been no therapeutic breakthroughs in Parkinson's this century Thinking and a call for change might be in order, but I don't get any of it seen or heard.

Unfortunately, it is unlikely that anything will change within the profession. He must from come from outside, from those who see the world differently. Spain still has a constitutional Monarchy, but rule is exercised by the people. As long as the millions from Parkinson'sIf those affected by the disease do not demand any changes, the status quo will prevail.

– Ray Dorsey

Ray Dorsey in the original

Madrid, Spain
September 14-17, 2022
cloudy thinking
From England, I flew to Madrid to attend the International Congress of Parkinson's Disease and Movement Disorders. There I saw countless friends and colleagues, many of whom I had not seen in years. I also saw how little has changed in our approach to the disease.

Despite the fact that most of Parkinson's is due to environmental factors, the topic is almost entirely ignored. The program for the Congress had a plenary session devoted to how genetics will impact clinical care and 67 abstracts on
the genetics of Parkinson's. By contrast, no sessions were devoted to environmental causes, and only 32 abstracts were focused on “epidemiology.”

Genetics are important and may explain why some farmers, for example, exposed to pesticides develop Parkinson's and why some do not. Yet, we have known for over a century that only ~15% of people with the condition have a family history of the disease. The environmental causes need more of us Warning.

Similarly, the Congress had a large focus on treatment including a clinical trial update, a discussion on choosing the best therapeutic targets, a video session on “fresh chemodenervation strategies” for treating symptoms, and numerous
others on physical, speech, and surgical therapies for the disease. Again, everyone is important, but so is prevention, which did not appear even once in the program. 

The status quo is clearly not working:

1. Parkinson's is the world's fastest growing brain disease

2. Almost no organization is primarily focused on preventing the disease

3. Over the last five years, use of the pesticide paraquat, banned in China,
has doubled in the US

4. In wealthy nations, a large portion of affected individuals do not receive
specialty care

5. In less wealthy nations, the majority lack access to a safe, inexpensive,
highly effective treatment (levodopa)

6. The US government spends 100 times more on Parkinson's care than
on Parkinson's research

7. We have had no therapeutic breakthroughs for Parkinson's this century
Reflection and a call for change might be in order, but I saw or heard neither.

Unfortunately, change is not likely to come from within the profession. it must come from the outside, from those who see the world differently. Spain quiet has a constitutional monarchy, but its rule is derived from its people. Until the millions affected by Parkinson's disease demand change, the status quo will reign supreme.

—Ray Dorsey

Source: https://mailchi.mp/endingpd/listening-tour-madrid?e=f3cb49e93a

Stay tuned.


1 Comment
  1. Detlev Friedriszik
    Detlev Friedriszik sagte:

    I've had Parkinson's for over 17 years and have been hearing since then that at all major events there will soon be medicine that at least slows down the progression of Parkinson's. In the meantime I can no longer hear this statement and it makes me angry, because I have been disappointed again and again for 17 years because there is still nothing that can give me a glimmer of hope. I am glad that I turned to the topic of sport and exercise 13 years ago, even against the opinion of many neurologists. I've been training with the green smovey swing system ever since and try to convince many patients to do sports with or without the swing system. Of those who became ill with me, 50% died, 10% demented and another 30% in the nursing home. I'm doing relatively well and as Prof. Schnitzler University Clinic Düsseldorf said, I'm surprised that you don't have any cognitive disorders. Now say a sport and exercise does not help to delay Parkinson's. Luckily, the neurologists have finally got it and they see it that way too. But I am deeply disappointed that, despite the large amount of money, so little is happening with the other options. A few articles about 120 over 17 years https://rp-online.de/nrw/staedte/krefeld/sport-gegen-parkinson-im-krefelder-stadtwald-mit-dem-smovey-system_aid-69118485 , https://www.niederrhein-nachrichten.de/2021/04/14/alltagsheld-detlev-friedriszik-ist-ueberzeugungstaeter/, https://rp-online.de/nrw/staedte/rheinberg/parkinson-wie-detlev-friedriszik-aus-alpsray-im-lockdown-aktiv-bleibt_aid-55690763

    Reply

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