Relatives Archives - Parkinson's Journal

Parkinson School, a place of support and information

August 8, 2024/0 comments/in Relatives, work, To know better, Exercise, Diagnosis, Nutrition, Events, Research and Development, Humor and Parkinson's, info event, drugs, Non-drug therapy, Guides, self-help, Symptoms, Therapies, Video/from Jürgen

The Parkinson School offers comprehensive support and information for people with Parkinson's and their families. As one of the original main goals of the Parkinson Verbund eV, the Parkinson Journal has taken on the task of realizing this.

The result is a unique series of lectures that covers the entire spectrum of topics related to our disease. The series of lectures aims to educate participants about Parkinson's disease and to deepen their knowledge. In online lectures lasting around one hour, all essential aspects of the disease are covered in order to enable those affected to meet their therapists and neurologists on an equal footing and to deal with the disease more confidently.

A fictitious day in the life with Parkinson's, part 2

June 3, 2024/0 comments/in Relatives, work, Exercise, life paths, self-help, Symptoms/from Jürgen

So what does the day look like for someone with Parkinson’s in the later stages of the disease? We ourselves like to ignore this part of the illness and we do everything we can to delay the point at which it occurs as much as possible. But it will come, that's a fact, at least for those with the disease at a young age, where Parkinson's disease has had enough time to develop.

A fictional day in the life of Parkinson's

30 Maj 2024/0 comments/in Relatives, work, Exercise, life paths, self-help, Symptoms/from Jürgen

This day highlights the daily challenges and joys of living with Parkinson's. There are highs, the joy of activities like table tennis and playing the piano, and lows caused by the OFF phases. But with support, therapy and a strong will, it is possible to live a fulfilling life.

What you need to know about Parkinson's

16 January 2024/0 comments/in Relatives, To know better, Exercise, Diagnosis, Nutrition, Research and Development, life paths, drugs, Non-drug therapy, Podcast, Guides, self-help, Symptoms, Therapies, Video/from Jürgen

When a person with Parkinson's or a relative wants to find out about a possible disease, accompanying symptoms play a crucial role. These can affect different parts of the body, including skin, skeleton, sensory organs and psyche. The severity and occurrence of these symptoms vary from person to person, and it is important to note that some symptoms may have other causes.

Parkinson's Patients in Hospital: The Challenges and Solutions

September 9, 2023/0 comments/in Relatives, To know better, drugs, Guides/from John

The increased risk of melanoma in Parkinson's patients has been documented in numerous scientific studies. A first comprehensive meta-analysis was published by Liu and colleagues in the journal Neurology in 2011 and found that people with Parkinson's had more than double the risk of being diagnosed with melanoma. An important study on this topic was also published in 2010 by John Bertoni and colleagues in the Archives of Neurology (later renamed JAMA Neurology). The Bertoni study used data from the North American Parkinson's and Melanoma Survey Group and found that the incidence of malignant melanoma was 2,24 times higher in the Parkinson's cohort compared to the general population.

Parkinson's and love

29 November 2022/0 comments/in Relatives, life paths/from Jürgen

Who would take me, who would want a woman by their side who has an illness that will increasingly take away her quality of life?
Who wants to give up their life, their freedom bit by bit, for someone they just met?
Who is willing to help? Who is willing to take on a journey that involves an uncertain path?
Who wants to live a life with someone like me?

All the questions were there, the thoughts that were circling around me as I stood at the train station in Stuttgart. And waited for the train into my new life.

Occupational therapy – second-class physiotherapy?

27 October 2022/0 comments/in Relatives, Therapies/from Jürgen

Let's take a look at the definition of occupational therapy according to the German Association for Occupational Therapy: "Occupational therapy supports and accompanies people of all ages who are restricted in their ability to act or are threatened with restriction. The aim is to strengthen them in carrying out meaningful activities in the areas of self-sufficiency, productivity and leisure time in their personal environment.
Specific activities, environmental adaptation and advice serve to enable people to act in everyday life, to participate in society and to improve their quality of life.” (DVE08/2007)

Parkinson's Self-Help Directory HUS

17 October 2022/0 comments/in Relatives, Guides, self-help/from Jürgen

Directory of Parkinson's self-help groups in Germany

relatives in occupational therapy

7 October 2022/0 comments/in Relatives, Therapies/from Jürgen

It is the relatives who know the affected person better than anyone else. They have known her for many years, have noticed the development and are stunned to observe the change and the slow decline in skills.